Your donation will support many children and infants
with seizure disabilities. Thank you for your support!
My name is Andy; some of my friends call me Nemo. They call me Nemo
because when I was born I suffered a stroke and it has left my left arm weak
and I do not have much function with that arm - it’s my “hurt” fin just like Nemo. I
am 17 years old and a junior in High School. Because of the stroke I have
limited use of my left arm and my hand doesn’t work very well. I also have a
slight limp on my left side because the stroke also affected my left leg. I have
been in physical therapy since before I could walk and have worked really hard
to train my arm and leg to assist me with many tasks. There are many people
who don’t even know I have any issues because my physical therapists and I
have worked so hard. In 2010 when I was in 7th grade I had my first seizure. I
was riding my bike to school with my best friend when I collapsed. My parents
were called and I was taken to the hospital in an ambulance. That fall off my
bike was the beginning of this long journey called epilepsy. I have really great
doctors at UCLA, my favorite school, and have made several trips to the
hospital there for long stays to try and figure out how to treat my seizures. In
2012 I was just about to have brain surgery to try to correct some of the
connections in my brain but at the last minute the surgery was cancelled. I have
continued to work with the doctors to try to come up with medications which will
treat my seizures. Some of the medications have bad side effects that make
me lethargic, I don’t have much of an appetite and I have a hard time sleeping
so we are working through that. I have been admitted to UCLA for many
lengthy stays. I have been in and out of school for the last couple of years. I
started this year and that only lasted a couple of months. There are many days I
have 3-5 seizures a day so it makes staying in the classroom hard. I really wish
I could go back to school. I miss all my friends and the daily things that happen
at school. I really hope to go back soon; my grades are not as good as they
should be and I know if I were in class every day I would do better. It is really
hard to be a teenager and not have the daily contact with all my friends and the
social things that go on. I love sports and am going to become a sports
broadcaster when I get older. I help out with the high school football program
and love being a part of that. Our local radio station has a program on Saturday
mornings called the Sports Round Up, and I am on the show pretty often. I get
to be on the radio and talk about all sports including high school sports,
college, and professional. I love to be on the radio and it has really helped me
during this tough time. A seizure dog would not just be my best friend; it will be
the friend that I can count on for help whenever I need it. Our goal is that the dog
will be able to alert me before I have a seizure. The dog will also be trained to
dial a special phone when I am having a seizure, provide support for me
afterward by helping me to get back up to my feet, and will be able to help me
relax and be calm with Deep Pressure Therapy while I recover. My parents will
know that I will be safe and protected if I have a seizure, because the dog will
always be there for me. The seizure dog will be the one friend that will always
be there for me no matter how many seizures I have. Thank you for your support!
Noah is a loving 3 year old boy & he is his parents' Superhero.
He is diagnosed with with Epilepsy, Systemic Mastocytosis (SM), Ehlers-
Danlos Syndrome type 3 & ASD. He loves to be a boy by pretending he is
batman, wrestling with his parents & building cars with his legos. He is very
close to his three older sisters.
Noah’s epileptic seizures have been uncontrolled for the last two years & he
has multiple seizures a week. Noah has a high risk of Sudden Unexpected
Death with Epilepsy & his SM raises his chances. Noah’s mom has recently
been sleeping in his room to be close to him. His seizures causes him to lose
consciousness, to pee his pants, have slurred speech at times & at times his
right leg turns 90 degrees outwards & he unable to properly move it & he has to
drag it forward to continue walking.
Recent tests have showed that Noah’s SM is attacking his GI, his CNS & his
bone marrow. His SM is classified as a Myeloproliferative Neoplasm. It’s a rare
disease, there is no cure & there is very little medications for it. When Noah
has an allergic reaction it is strong enough that he will have an epileptic seizure
later that day. Noah’s SM causes him to have major bone pain in both legs,
fatigue, anaphylaxis easily & sadly his list goes on.
Sadly due to his SM & his epilepsy Noah can only play around thirty minutes
outside before he gets very tired & feels sick. If he plays too hard, walks too
much, or is outside too long he will either have an epileptic seizure or a
A Seizure Alert and Assistance dog will be able to alert Noah’s parents when
he is about to have a seizure, comfort Noah after a seizure with Deep Pressure
Therapy, retrieve a vest that contains Noah’s emergency medications for his
epilepsy & for his SM and will be able to dial a specially designed assistance
dog telephone that will notify emergency personnel. The dog will also provide
peace of mind to Noah’s parents & be a best friend to Noah since his SM
requires him to be homebound so often.
Hi my name is Dakota and I am 16 years old. I have suffered from seizures
since I was a toddler. For many years the seizures were dominant and I did not
have any, then in August of last year my whole life was turned upside down
when the seizures re-occurred. I was at school at the time and had to be
rushed to the hospital. Since August of last year I have had many bouts with
hospital stays, hospital visits, and a tremendous amount of tests. I see many
doctors who are not able to get these seizures under control or figured out. I
am on a tremendous amount of medications that keep me from being able to
do much. My quality of life is not what it should be as I really do not have any
right now. I have as many as 4-5 seizures a day, which then makes me sleep.
So basically my life consists of seizing and sleeping.
I have not been able to attend school since October of last year and until I get
my seizure dog, I will not be able to go back to school. I am not able to go any
where with my friends because I do not recall where I am, who I am, and who
my family is when I have a seizure;
sometimes this memory loss lasts for up to 12 hours after my seizures. This
makes me have to stay at home much of the time. I would love to be able to
just do some things that 16 year old kids can do and my seizure service dog
would allow me to be able to do this. My seizure service dog will allow my mom
to have some peace of mind as well. Thank you for helping me get my friend
and companion that will make my life much better.
My name is Daniel. I'm 9-years-old and I was born with Nuerofibromatosis type
1, we call it NF because it's easier. I have developed a seizure disorder along
with my NF.
NF type 1 is a multi -system genetic disorder that is characterized by cafe-au-
lait spots, skeletal dysplasia, and by the growth of both benign and malignant
nervous system tumors. I have developed a tumor in my right eye, taking away
the vision in it, as well as tumors in my right leg and spine. The ones in my leg
and spine make it harder for me to go on long outings, and cause me pain so I
use a wheelchair for those occasions, and it's possible that I will need to
permanently use a wheelchair soon.
I suffered my first seizure when I was 4 years old. At the time my parents didn't
know I had seizures and I was desperately trying to sleep with my sisters so I
wouldn't be alone. When I was diagnosed my parents found out why.I have
grand mal seizures, and just recently started experiencing drop seizures where
I lose my ability to stand or hold things and I just fall down.
I have had 4 different surgeries throughout my life and will need more. One to
remove a brain tumor, and the other three surgeries to try and debulk the tumor
in my right eye, which will keep coming back.
There is no cure for my disease.
I have a team of wonderful doctors at CHLA that have been there for me
helping me navigate this disease. I usually have my seizures at night so having
a seizure assistance dog would help by alerting my family when I am most at
need, giving them some piece of mind, and possibly saving my life. My dog will
also be trained to dial an assistance dog phone to get help, brace me for
balance so I can stay out of my wheelchair as long as possible, and perform
deep pressure therapy to help me make it through the hardest days.
Thank you so much for supporting these life-changing dogs!
My name is Hayden, aka "FlyBoy". People call me "FlyBoy" because I LOVE
airplanes! Everything airplane related and I love to travel. In fact, my mom tells
me that my first word was “airplane.” I want to be a pilot when I grow up.
I was adopted at birth and my mom and dad fell madly in love with me at first
sight. My early years were fun filled and I went to preschool and kindergarten
and made lots of friends. But when I was practicing for my kindergarten
graduation, I fell off my chair on the stage and had my first Grand Mal seizure. I
was 5 years old. From that point on my life changed forever. After continuing
convulsing seizures that forced me to miss my kindergarten graduation and
going to the ER numerous times, the neurologist had me undergo all kinds of
scary tests. I was diagnosed with epilepsy; this means that my brain has
sudden and uncontrollable electrical “storms” that cause my body to go into
The doctors gave me a drug called Keppra, but all that did was make me
speak slowly and slur my words, or worse, my brain knew what I wanted to say
but the words wouldn’t reach my lips. The seizures continued, and I became so
frustrated that I talked about dying. My parents got me off that medicine right
away. Once I stopped Keppra, my parents said they could see my sparkle and
personality come back, even though the seizures continued. My journey to find
a control for my seizures has continued for several years since then, trying
numerous powerful drugs with little success. And all of those drugs gave me
really bad side effects that my parents couldn’t bear to see me endure.
All the medicine I was taking made it hard for me to learn at school, and I
repeated 1st grade. Unfortunately I was having so many seizures (and different
types, from tonic clonic to absence to drop seizures where I would just collapse
and get hurt), that I now have to be home-schooled and wear a helmet. I’ve
ended up in the hospital numerous times because of seizure “clusters”
(seizures occurring as often as every 5-10 minutes) that my parents couldn’t
stop with rescue medicines that were given to us by my doctors. The doctors
did more tests on me, and said that I was having hundreds of seizures inside
my brain that couldn’t be seen because my body wasn’t convulsing.
My parents are now trying a specialized diet where I’m allowed very few
carbohydrates. That means I can’t have anything with sugar (no cookies, cake,
ice cream, etc.), or numerous other foods that we take every day for granted
(no bread, cereal, pasta, potatoes, milk...). My mom has to measure my food
portions to ensure that I’m getting the right amount of fats and calories. It seems
to be helping a little bit, but my seizures are still happening every night and day.
A seizure dog would not only be my best friend, but would alert me to an
oncoming seizure(s) and make sure I’m safe. He would have rescue medicine
in his vest if needed, and he can help comfort me after the seizure; plus be able
to dial a special phone if I need help. I would be able to sleep in my own
bedroom instead of in my mom’s bed while daddy sleeps on a mattress on the
floor. I would be able to have play dates and go back to school! I miss all my
friends at school and my teachers. A seizure dog will help me in so many ways!
Thank you for helping to make this a reality!
Hi, my name is Caleb. I am 6 years old and full of life. My mom and dad say I
am sometimes too full of life because I never sit still and I'm on the go
constantly. On February 13th of 2013 I had my first tonic clonic (grand mal)
seizure while sleeping. My daddy heard me hitting the wall and came running
to me. He picked me up and brought me to my mommy. My mommy put me
on her lap while my entire body shook, jerked and my eyes rolled. Five minutes
later my body stopped shaking but I did not know where I was, who I was, who
my mommy or daddy were and I just wanted to go back to sleep. My mommy
says that was the scariest five minutes of her life and she is thankful I do not
After a month of different types of seizures I was diagnosed with Generalized
Epilepsy. I have nocturnal tonic clonics almost every night now. I also have
partial complex seizures which cause me to stare off at absolutely nothing and
make my right arm, hand and fingers jerk and contract. I also have absence
seizures which many times no one realizes what is happening. Most people
think I am not paying attention, but that is not true. I do not even remember what
happened during a seizure and most times it takes several minutes afterward
to know what is going on around me.
I have always been a climber and jumper, very active, and not afraid of
anything. Now I don't climb or jump as much, I'm a lot more scared of things, I
don't always remember the things I know I am supposed to. My mommy is
working very hard to teach me my letters, sounds of letters, and how to write
correctly. I used to be able to do all this but since I started having seizures I
don't remember them. I get very frustrated sometimes but my mommy says
we'll figure it out.
I am in occupational therapy twice a week to help with my sensory processing
and fine motor skills. I am in speech therapy to help with my speech/language
delay and I am now seeing an art therapist to help me with my motor skills and
frustrations from not always remembering. I know that once I get my seizure
dog I will be able to do more of the things I used to do. I will be able to sleep in
my own bed again because my dog will be trained to push a dog assistance
phone to tell my mommy and daddy I am having a seizure, my dog will be able
to make sure I don't hit my head when I fall, my dog will be able to give my
mommy and daddy comfort knowing I won't be alone if I have a seizure. My
dog will be able to alert my mommy before I have a seizure so that she can
make sure I am safe so I do not get hurt. My dog will let me be a kid again.
Cyra is 12 years old and in the 7th grade. One of Cyra’s biggest assets is her
uncanny ability to be empathetic with others. She is the one, who asks kids
that are alone, if they want to play. If someone is having a bad day, she will
give them hug. Cyra sees the opportunity to make someone feel better and
does so. When Cyra was in the second grade, she began having unexplained
visual disturbances. One afternoon, she got “stuck” in one of these
disturbances; she was having a seizure. Her life suddenly changed, becoming
a road of doctor appointments, hospital visits, and unwanted side-effects of
medications. Cyra was diagnosed with partial-complex seizures. She has
gone through several medicines and combinations thereof to little avail. Her
seizures are now defined as “medically resistive” due to the lack of response to
A seizure response dog will allow Cyra the independence of being a growing
teen and the security of knowing that someone is constantly looking out for her.
Cyra’s seizures happen frequently yet have rarely been noticed by the staff at
her school. Her fear is having a “bad” seizure and no one being perceptive that
it has happened. Partial-complex seizures can sometimes include “wandering”
or moving while completely unaware. Cyra recently wandered out of line at
school, then contorted, causing a fall to the asphalt. The dog can provided
“Deep Pressure Therapy” to help with the confusion and fear that takes place
immediately following a seizure. A seizure response dog would increase
Cyra's confidence about handling herself independently as well as aid in her
Our daughter deserves to attend school and participate in life without fear that
she is going to have an unnoticed seizure, alone.
Thank you for your time and consideration,
|Help Support Children
who suffer from seizures today!