Your donation will support many children and infants
with seizure disabilities. Thank you for your support!
Hi! I am Kierra Grace. I am 8 years old and love life! I love to be outdoors and
to run, run, run! I love to watch the leaves blow in the trees and listen to water
running and feeling the sun on my face. My mama and my brother are beside
me at all times because I have a severe seizure disorder. Without warning I will
go into a seizure 3-6 times a day. I cannot talk to let my mama to let her know I
am feeling funny. I have tried many different medicine combinations and
nothing has slowed the seizures. I do have a Vegal Nerve Stimulator inserted
which has slowed them down from 40-60 a day. I don’t want to be stuck in a
wheelchair for my safety always wondering when a seizure is going to hit.
Kierra Grace was diagnosed with Tuberous Sclerosis at age 11 months and
was found to be in the advanced stages of this disease. It is a condition in
which tumors can grow on any organ in the body. Kierra Grace was born with
the ones in her brain. Some conditions that she has are Autism,
Developemental Delay, expressive and recessive language delay, gross and
fine motor delays, and Lennonx-Gastaut syndrome. This is a rare and non
treatable form of epilepsy. She does not qualify for brain surgery because all of
her seizures are generalized, which means they happen all over her brain.
Kierra Grace is at high risk for SUDEP, which refers to the unexplained death
of an individual, with a diagnosis of epilepsy, who dies suddenly. She is also at
high risk for accidental death by a seizure in which she falls and the injury is so
great it kills her.
Kierra Grace has dangerous drop seizures. Kierra Grace stops breathing and
has rescue meds that need to be administered because the seizures come in
clusters and don’t stop. Her mom needs to leave her baby girl on the floor to
run and grab her seizure medicine. A dog can do many things for her family.
The dog can retrieve a medicine bag during a seizure. The dog can also alert
before a seizure strikes to prevent further injury. This will all allow Kierra Grace
to be able to run as she likes and have freedom outside of a wheelchair.
Thank you for your donation that is so desperately needed for Kierra Grace's
Noah is a loving 3 year old boy & he is his parents' Superhero.
He is diagnosed with with Epilepsy, Systemic Mastocytosis (SM), Ehlers-
Danlos Syndrome type 3 & ASD. He loves to be a boy by pretending he is
batman, wrestling with his parents & building cars with his legos. He is very
close to his three older sisters.
Noah’s epileptic seizures have been uncontrolled for the last two years & he
has multiple seizures a week. Noah has a high risk of Sudden Unexpected
Death with Epilepsy & his SM raises his chances. Noah’s mom has recently
been sleeping in his room to be close to him. His seizures causes him to lose
consciousness, to pee his pants, have slurred speech at times & at times his
right leg turns 90 degrees outwards & he unable to properly move it & he has to
drag it forward to continue walking.
Recent tests have showed that Noah’s SM is attacking his GI, his CNS & his
bone marrow. His SM is classified as a Myeloproliferative Neoplasm. It’s a rare
disease, there is no cure & there is very little medications for it. When Noah
has an allergic reaction it is strong enough that he will have an epileptic seizure
later that day. Noah’s SM causes him to have major bone pain in both legs,
fatigue, anaphylaxis easily & sadly his list goes on.
Sadly due to his SM & his epilepsy Noah can only play around thirty minutes
outside before he gets very tired & feels sick. If he plays too hard, walks too
much, or is outside too long he will either have an epileptic seizure or a
A Seizure Alert and Assistance dog will be able to alert Noah’s parents when
he is about to have a seizure, comfort Noah after a seizure with Deep Pressure
Therapy, retrieve a vest that contains Noah’s emergency medications for his
epilepsy & for his SM and will be able to dial a specially designed assistance
dog telephone that will notify emergency personnel. The dog will also provide
peace of mind to Noah’s parents & be a best friend to Noah since his SM
requires him to be homebound so often.
While I may look fine, my life has been far from normal. My name is Kameron
and from the day I was born my mommy and daddy knew that I was going to be
special! My first surgery came at 6 weeks old to fix my tummy but things didn’t
stop there. A few months and lots of hospital time later I found out I have
Mastocytosis and this was the reason my body couldn’t heal or grow well. It was
also the reason I had gone into anaphylaxis a few times. I have since had 21
surgeries and 17 anaphylactic attacks and only 5 years old!
At 1 year old I experienced my first seizure while I was having a great time with
my family at the county fair. My mommy and daddy rushed me to the ER and
they transferred me to Mayo clinic where it was determined that I have a
generalized seizure disorder as well. My seizures aren’t normal either, I have
absence seizures so it looks like I am daydreaming or not paying attention to
what I am supposed to be doing. I have had a few grand maul seizures as well
but those are mostly when I am getting really sick and my body is overwhelmed.
While the seizures and mastocytosis isn’t bad enough I have severe anxiety
and autism as well. If there are too many people around I tend to shy away or
melt down. When in public if there are too many people all I want to do is get to
the closest door and run away. I have ran away from mommy and daddy
because I was scared, but was even more scared when I couldn’t find them! To
make matters even worse if my anxiety gets too bad and I get too stressed out I
can go into anaphylaxis because of the Mastocytosis.
Getting my new best friend will hopefully make my life so much easier but also
mommy and daddy will be able to relax as well because I will be safe!
Logan and Kaleb are amazing 2 year old twins afflicted with a very rare and
catastrophic form of genetic epilepsy. These boys came home healthy and
happy after birth and we were settling into life as first time parents with my
husband a full time student. It was a busy, crazy and fun blur. Then May 11th
happened - the day of their 4 month well baby check. Our loves received the
first vaccination (a combo of 5 actually) and six hours later, while I was home
alone, Kaleb did a weird jerk while nursing. He immediately went into a huge
grand mal seizure, unresponsive and turning gray in the face. I was on the
phone with 911 in less than 5 seconds. Unfortunately, I knew exactly what was
happening. I also knew he did not have a fever and that it was bad that it just
kept going, requiring multiple doses of rescue medication to stop.
Upon arriving to Seattle Children's ER, Logan began seizing also! His seizure
also required multiple doses of medications to stop and was prolonged. This
was the first day of our family's life-long battle with Dravet Syndrome. In 95% of
these cases the gene is not inherited from a parent but a spontaneous
occurrence, meaning Dravet simply chose our little angels. Dravet is
accompanied by learning difficulties, behavioral problems and severe global
delays, especially language and motor. The disease is progressively
detrimental with most children developing normally for the first 1-2 years of life.
This dynamic duo will be dependent on others for life. These boys are such
happy, sweet and loving characters! So full of personality.....one therapist calls
them her Cherubs, another her Giggle Boxes. They work hard in their therapies,
love life and adore being around other kids. They love
each other so much and we are honored to be their parents, even if it is a tough
road. They truly are the light in our lives. We are doing whatever we can to
assist them in becoming as independent as possible. One critical component
we must have in place
for them is a service dog. This dog will become an integral part of their
everyday lives bringing hard to obtain piece of mind for their parents and
potentially life saving, highly skilled companionship to each of them.
My name is Hayden, aka "FlyBoy". People call me "FlyBoy" because I LOVE
airplanes! Everything airplane related and I love to travel. In fact, my mom tells
me that my first word was “airplane.” I want to be a pilot when I grow up.
I was adopted at birth and my mom and dad fell madly in love with me at first
sight. My early years were fun filled and I went to preschool and kindergarten
and made lots of friends. But when I was practicing for my kindergarten
graduation, I fell off my chair on the stage and had my first Grand Mal seizure. I
was 5 years old. From that point on my life changed forever. After continuing
convulsing seizures that forced me to miss my kindergarten graduation and
going to the ER numerous times, the neurologist had me undergo all kinds of
scary tests. I was diagnosed with epilepsy; this means that my brain has
sudden and uncontrollable electrical “storms” that cause my body to go into
The doctors gave me a drug called Keppra, but all that did was make me
speak slowly and slur my words, or worse, my brain knew what I wanted to say
but the words wouldn’t reach my lips. The seizures continued, and I became so
frustrated that I talked about dying. My parents got me off that medicine right
away. Once I stopped Keppra, my parents said they could see my sparkle and
personality come back, even though the seizures continued. My journey to find
a control for my seizures has continued for several years since then, trying
numerous powerful drugs with little success. And all of those drugs gave me
really bad side effects that my parents couldn’t bear to see me endure.
All the medicine I was taking made it hard for me to learn at school, and I
repeated 1st grade. Unfortunately I was having so many seizures (and different
types, from tonic clonic to absence to drop seizures where I would just collapse
and get hurt), that I now have to be home-schooled and wear a helmet. I’ve
ended up in the hospital numerous times because of seizure “clusters”
(seizures occurring as often as every 5-10 minutes) that my parents couldn’t
stop with rescue medicines that were given to us by my doctors. The doctors
did more tests on me, and said that I was having hundreds of seizures inside
my brain that couldn’t be seen because my body wasn’t convulsing.
My parents are now trying a specialized diet where I’m allowed very few
carbohydrates. That means I can’t have anything with sugar (no cookies, cake,
ice cream, etc.), or numerous other foods that we take every day for granted
(no bread, cereal, pasta, potatoes, milk...). My mom has to measure my food
portions to ensure that I’m getting the right amount of fats and calories. It seems
to be helping a little bit, but my seizures are still happening every night and day.
A seizure dog would not only be my best friend, but would alert me to an
oncoming seizure(s) and make sure I’m safe. He would have rescue medicine
in his vest if needed, and he can help comfort me after the seizure; plus be able
to dial a special phone if I need help. I would be able to sleep in my own
bedroom instead of in my mom’s bed while daddy sleeps on a mattress on the
floor. I would be able to have play dates and go back to school! I miss all my
friends at school and my teachers. A seizure dog will help me in so many ways!
Thank you for helping to make this a reality!
Hi, my name is Caleb. I am 6 years old and full of life. My mom and dad say I
am sometimes too full of life because I never sit still and I'm on the go
constantly. On February 13th of 2013 I had my first tonic clonic (grand mal)
seizure while sleeping. My daddy heard me hitting the wall and came running
to me. He picked me up and brought me to my mommy. My mommy put me
on her lap while my entire body shook, jerked and my eyes rolled. Five minutes
later my body stopped shaking but I did not know where I was, who I was, who
my mommy or daddy were and I just wanted to go back to sleep. My mommy
says that was the scariest five minutes of her life and she is thankful I do not
After a month of different types of seizures I was diagnosed with Generalized
Epilepsy. I have nocturnal tonic clonics almost every night now. I also have
partial complex seizures which cause me to stare off at absolutely nothing and
make my right arm, hand and fingers jerk and contract. I also have absence
seizures which many times no one realizes what is happening. Most people
think I am not paying attention, but that is not true. I do not even remember what
happened during a seizure and most times it takes several minutes afterward
to know what is going on around me.
I have always been a climber and jumper, very active, and not afraid of
anything. Now I don't climb or jump as much, I'm a lot more scared of things, I
don't always remember the things I know I am supposed to. My mommy is
working very hard to teach me my letters, sounds of letters, and how to write
correctly. I used to be able to do all this but since I started having seizures I
don't remember them. I get very frustrated sometimes but my mommy says
we'll figure it out.
I am in occupational therapy twice a week to help with my sensory processing
and fine motor skills. I am in speech therapy to help with my speech/language
delay and I am now seeing an art therapist to help me with my motor skills and
frustrations from not always remembering. I know that once I get my seizure
dog I will be able to do more of the things I used to do. I will be able to sleep in
my own bed again because my dog will be trained to push a dog assistance
phone to tell my mommy and daddy I am having a seizure, my dog will be able
to make sure I don't hit my head when I fall, my dog will be able to give my
mommy and daddy comfort knowing I won't be alone if I have a seizure. My
dog will be able to alert my mommy before I have a seizure so that she can
make sure I am safe so I do not get hurt. My dog will let me be a kid again.
Cyra is 12 years old and in the 7th grade. One of Cyra’s biggest assets is her
uncanny ability to be empathetic with others. She is the one, who asks kids
that are alone, if they want to play. If someone is having a bad day, she will
give them hug. Cyra sees the opportunity to make someone feel better and
does so. When Cyra was in the second grade, she began having unexplained
visual disturbances. One afternoon, she got “stuck” in one of these
disturbances; she was having a seizure. Her life suddenly changed, becoming
a road of doctor appointments, hospital visits, and unwanted side-effects of
medications. Cyra was diagnosed with partial-complex seizures. She has
gone through several medicines and combinations thereof to little avail. Her
seizures are now defined as “medically resistive” due to the lack of response to
A seizure response dog will allow Cyra the independence of being a growing
teen and the security of knowing that someone is constantly looking out for her.
Cyra’s seizures happen frequently yet have rarely been noticed by the staff at
her school. Her fear is having a “bad” seizure and no one being perceptive that
it has happened. Partial-complex seizures can sometimes include “wandering”
or moving while completely unaware. Cyra recently wandered out of line at
school, then contorted, causing a fall to the asphalt. The dog can provided
“Deep Pressure Therapy” to help with the confusion and fear that takes place
immediately following a seizure. A seizure response dog would increase
Cyra's confidence about handling herself independently as well as aid in her
Our daughter deserves to attend school and participate in life without fear that
she is going to have an unnoticed seizure, alone.
Thank you for your time and consideration,
|Help Support Children
who suffer from seizures today!